Child Loss:

For those seeking survival and joy after child loss.

Sunday, June 26, 2016

Death Anniversary



I know how to handle my angel's birthday: we throw her a party with an angel food cake.  We make her presents.  We go to the LDS temple.  I can (sometimes) handle it with some good grace.  But there's nothing lovely or inspiring about the anniversary of her death.  There's no way to feel or be in a way that won't hurt.  The day is a landmine.  I just know in advance that it will hurt, and no amount of bracing will help.  As I've said before, most days, I'm fine.  Most days, I can handle loss.  I don't have to think about loss all day every day.  I just miss her, and that's part of my life.



But on the death day, the scar tissue/bandage are yanked off, and the wound is exposed.  The lightest touch will hurt.  I know it will.  It's part of how these days work.  The day comes, and it feels like no time has passed.

Other than a temple trip, the only thing that we consistently do from year to year is to pull out her picture book to open the wound because it will happen whether or not we plan for it.  If we as a family plan a set time to open her book, we also plan a set time where we can cry and let the emotions flow.  And at least once a year, that's okay.  It's simply part of mourning.

Monday, June 20, 2016

The Death Date



I think most people remember the significant dates of their loss:birth date, death date, sometimes due date.  Those dates tend to bound off the page.  You start scheduling things for one of the months of one or the other of those dates [assuming there are two or even three], and that date tends to pop out at you wherever you go.

Such is the case for June 29th.  When I started that day six years ago this month, it was just another date, a date when I had a rare work day during the summer.   Now, it's become emblazoned on my mind as her death date.  Everywhere I look, there's the number 29: milk jugs, my work calendar, events... It's almost like there isn't another date in the entire month that matters because EVERYTHING seems to point to the 29th.  It's a trigger like no other, and it's everywhere.

Somehow, I have to figure out how to block out that one date, to forgive the number for its offensive existence.  I'm just not ready yet.    I'm sure I'm not the only one to whom this happens.

Sunday, June 12, 2016

Writing Letters to Angels



People have looked for ways to connect with their loved ones beyond the grave for centuries, millenia.  What this says is they think their loved ones are far away or even sitting around a cemetery.   Mythological stories and other stories throughout time have shown a great distance between the mourner and the mourned.  

But from my point of view, our angels are not far away.  They can many times see us, though we cannot see them.  This is not to say that I believe that our angels have nothing better to do than to stare at us all day long.  They are busy.  But we can reach them.  



I truly believe that reaching our loved ones can happen through prayer--we can pass on messages to them through our prayer, not that we pray to them directly--and through writing letters.  Sometimes, messages we speak can reach them.  I think that what with our loved ones being so close, they could read our notes or have them passed on to them.  This may not match with what you believe, but that's okay.  Many people believe that writing and speaking out helps them work through their pain.  Even if you don't believe messages can be passed on through written word, spoken word, or prayer, at the very least, you'll be helping yourself work through your issues.  But I believe that messages can be passed on to our loved ones through written, spoken, and prayed word.  Heaven is nearby.  

Many believe our loved ones watch over us when they can.  They want to see that we are happy and moving on.  I'm sure it causes them pain to see us in constant mourning.  I have written my emotions out through journaling, through blogging, through letters to my loved ones beyond, and many other kinds of writing.  I have prayed that hugs be passed to my loved ones beyond.  I've have prayed to know that my angels were with me at important moments.  

I know this can work for you.  Even if you don't believe this can help your loved ones, know it can help you.  Our angels are not far away, and they continue to love us where they are.  

Sunday, June 5, 2016

Faith and Healing

Morning is Unique

Mourning is an individual experience.  For each person, grief takes different forms.  A lot of people tout the virtues of Elizabeth Kubler-Ross’s five stages of grief.  When my baby smothered herself in a pillow six years ago, the support groups I joined each handed me a copy of the five stages as if it were a guide book to the experience of mourning.  Yet my experience and those of others around me seem to defy one single process, one single experience.  The five stages did not help me in my personal search for healing.  They did nothing for me except set me up for a confusing and incomplete definition of healing. 



False Expectations:

            Before my baby passed away, I lived in the illusion of safety, that just because no great tragedy had happened to me, it couldn’t.  It felt like a kind of protection that shielded me from the worst the world had to offer.  Then when my baby died, I was unprepared.  I had taken a class on trauma writing.  I had also written my master’s thesis on how reading fictional accounts of trauma and healing can provide a safer, somewhat removed space in which to deal with tragedy.  But none of this prepared me for the actual experience of loss. 

            I had heard time heals all wounds and was set up by that “guide book” I was handed for an expectation that all I had to do was let time pass, and Kubler-Ross’s five stages would happen to me.  As soon as they were done, I’d be healed.  I’d go back to how I was before my tragedy had punched a big bloody hole in my heart.  I wanted something to make it better because it hurt so much. 



The Reality

I knew, based on my experiences with child development classes, that stages meant states of being that would happen on their own in a normalized sort of order.  But in reality, I found myself going through a crazy mix of emotions, only a few of which matched up with Kubler-Ross’s stages of shock and denial, anger, depression and detachment, dialogue and bargaining, and acceptance, all of which were supposed to lead to a return to a meaningful life.  I didn’t see a lot of anger or detachment.  I couldn’t really deny anything.  And there were so many more emotions that weren’t on the list that I faced.  I discovered I could go through all of these emotions and more in a month, a week, or even an hour.  I’d skip from shock to acceptance and back to depression or hysteria then eagerness to share my story and back to depression again.  There was nothing stage-like in any of it. Even on days of acceptance, and even after returning to a meaningful life, it still hurt.  My heart still felt like it had a bloody, nasty, painful hole in it that wouldn’t go away. 

As time passed, I found ways to not think, to keep busy, to look at anything but my baby’s pictures or other triggers that sent me into fits of hysteria.  Basically, time allowed me to grow scabs over the big, bloody, painful hole, so I wouldn’t have to feel it.  But a scab is not nearly as comfortable or sensitive a tissue as regular flesh.  All it took was a nudge or poke at the edges of the scab, and I was in pain again.  


Research

So I started to look elsewhere for guidance in the healing process.  I picked up Robert Neimeyer’s book, Meaning Reconstruction and the Exerience of Loss, that debunked Kubler-Ross’s stages as unscientific.  He pointed out that Kubler-Ross’s original theory was based on the experience of dying, not on grief at all.  And he also pointed out that her theory had no scientific foundation or basis in fact, that the “stages” she defined were not stages at all.  I merely learned what I already knew, that grief involves “highly individual processes.”  What I didn’t find in either text was a useful idea of what healing would feel like for me, what it even meant.  Both texts defined healing as, basically, a return to normalcy.  I had returned to some kind of functionality, which meant by either definition, I was healed.  But I certainly didn’t feel healed.  Memories of my loss still hurt acutely even years later. 

 I am a member of the Church of Jesus Christ of Latter-Day Saints, so another kind of guide I was given and studied was a variety of books by other LDS people about their experience of loss and healing.  Almost across the board, they set up a model of prayer, reading scriptures, and above all, having another baby, a rainbow baby to fill the arms even if he or she couldn’t replace the baby lost.  So we tried.  We spent years trying, only to have a total of 15 losses in a row before we walked away from trying, one baby death and 14 first term miscarriages.  All the testing brought us no answer as to the source of our problem and no rainbow baby.  We’ve recently come to terms with the idea that my body just will not carry babies to term anymore for whatever reason. 



Turning to the Source

So instead, I have turned to God for answers, and I have come to a greater understanding of the healing process than I ever did through science or pseudoscience.   Just after my baby died, I turned intensely to faith.  I prayed harder, studied scriptures more closely and with the guide of the Spirit, more than I ever have in my life.  I felt the best, the most at peace, when I sensed other people’s prayers and when I was full of the influence of the Comforter, also called the Holy Ghost.  God doesn’t want us to suffer.  If we turn to Him, he will bring us comfort.  I felt the best when I felt wrapped in His arms. 

Being healed for me is not just about being functional.  Someone could be dying inside but still live what looks like a normal life from the outside.  The best definition I have heard is that a person who is healed is able to look at a picture or other reminder of the loved one and smile over the memories and blessings more than ache over the loss.  Six years after my loss, I am not there yet, but I’d like to be.  I have moments of peace like that, but they don’t last.  However, this portrait of a healed heart gives me a goal to work toward above and beyond just the goal of functionality.  I met someone recently who has bouts of depression but otherwise, arrived at the emotional state I’m still striving for within hours of delivery of a stillbirth.  The Lord sent her spiritual experiences that immediately brought the peace and joy that have been hard-fought for me.  Everyone is different, so everyone’s experience is different.  True healing is a gift the Lord can give in His time and in His way if we earnestly seek it and pray for it.  



The key is applying the Lord’s atonement.  When Jesus suffered and died for us, he didn’t just suffer for our sins.  He also suffered our pains.  He understands what we suffer.  He understands loss, sadness, and pain.  We need to reach out to him.  We need to seek His peace through obedience, through scripture study, and through bringing the Spirit into our lives so strongly that there is no more space for pain.  He will buffer us from agony.  He will bring us joy and peace.  

One of the general authorities of the LDS church, Elder Shayne Bowen, told the story of how his toddler choked on chalk and died.  Elder Bowen went through pain, anger, frustration, and guilt.  He rejected the comforting words of those who tried to reach out to him.  But as he focused more on gratitude for what he had rather than on his pain and loss, he began to find peace and joy.  The Lord “gave him a new heart," a heart full of light rather than “darkness and despair.”  He did warn that “you will never completely get over [grief] until you are once again with your departed loved ones […or] have a fullness of joy until [you] are reunited in the morning of the First Resurrection.”  But we can still have joy, love, and peace.  We can, as he says, “continue with good cheer.”  The Lord can heal our hearts when we seek Him in sincere prayer, service of our fellow man, obedience, love, and gratitude. 

We will never be the same person we were before.  But we also don’t have to suffer for the rest of our lives, either.  Each person has a different journey, but we don’t have to make this journey alone.  We have our fellow travelers here, but most of all, we have the Lord who loves us with all his heart and wants us to find peace and joy.